Disability Open Day hosted by Rare Ireland
Event Details: Disability Open Day, Friday, October 18, Shamrock Lodge Hotel, 10am-4pm
Rare Ireland supports families in many ways including providing a safe space for families to engage with other rare families and financial support towards private appointments to help children reach their potential and avoid lengthy public waiting lists.
Rare Ireland also works together with other organisations to promote the need for improved care pathways for people living with rare diseases. Rare Ireland is a voluntary, parent-run charity, set up in 2017 by two mothers of children with rare chromosome disorders.
Rare Ireland is the only organisation in Ireland dedicated to supporting families living with rare diseases. We strive to work on behalf of the rare community, highlighting the needs of families living with rare diseases and identifying areas where we can influence change to improve services.
Open Day
Our Disability Open Day/Exhibition which runs from 10am to 4pm on Friday October 18 is a unique free event which caters to any individual or family living with a disability.
This informal exhibition event is a great opportunity to meet face-to-face with support organisations that can support families living with disabilities.
It aims to provide families with valuable information that can help improve their quality of life. Registration in advance is not necessary for the Open Day which will have exhibits from both national and local charities and support organisations which offer a wide range of valuable services and supports to families of children with additional needs. These include Family Carers Ireland, The Irish Wheelchair Association, Inclusion Ireland, LauraLynn Ireland’s Children’s Hospice, The Jack and Jill Children’s Foundation, Little Blue Heroes, The National Learning Network, and many more. Ireland's only Interactive Children’s Ambulance Service, BUMBLEance will be on site on the day, come along and get onboard to see the great service it provides.
The Disability Open Day/Exhibition is a free event.
Parents and Carers of children with disabilities and rare diseases are most welcome to attend. Registration is not necessary for the Open Day.
Further information is available online or by calling 089 422 0228.
Conference
The Rare Ireland Annual Conference also takes place on the day and admission is also free of charge. Those who wish to attend the conference are asked to please register in advance here or by calling 089 422 0228
Charity Ball
Later, on the same evening Rare Ireland will host its first Rare Ireland Charity Ball in aid of rare children and their families. Please book your tickets now and help us make a difference for all our Rare Families. Please mark it in your diary, support this very worthy cause and enjoy a great night’s entertainment with family, friends, colleagues or clients